FICS Scholarly Articles

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https://repository.upou.edu.ph/handle/20.500.13073/8
Faculty and staff research papers from the Faculty of Information and Communication Studies.

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Browsing FICS Scholarly Articles by Subject "Research Subject Categories::INTERDISCIPLINARY RESEARCH AREAS::Health and medical services in society"
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    Designing for One's Own: Towards Technology Design Education for Home and Family Care
    ( 2024-04-24) Maranan, Diego S.
    Participatory design is a well-known methodology that involves end-users in the design process to create products and services that better meet their needs [1]. However, this approach is often applied to public or shared spaces rather than (one’s own) personal or family spaces. Even in family-centered design practices, designers’ attention are on the families of others, not their own [2], [3]. In this presentation, I describe the early stages of development of an educational approach as part of art and design research education, where students intentionally collaborate with their own family members, relatives, and friends as research participants and co-designers, and not merely for convenience. The approach draws inspiration from Hiroshi Ishii's "Weather Forecast Bottle," a tangible interface he developed specifically for his mother in the early 2000s [4], and has since fundamentally contributed to the field of tangible and embodied interface research [5]. The presentation will also discuss artistic and design projects I have undertaken with the intent to develop technologies and design propositions that benefit and provide care for my own family [6]. The framework borrows approaches from design fiction [3], [7], somatic practices [8], user experience and human-computer interaction (HCI) research [9], and visual and performance arts, and could be used to apply digital and frontier technologies such as wearable technology, IoT, and artificial intelligence in developing interventions for facilitating care within one’s home and family. I suggest that such an approach contributes to design education even as it addresses the need to care for one's own loved ones through targeted and context-appropriate applications of conventional participatory design and family-centered design. [1] C. Ten Holter, “Participatory design: lessons and directions for responsible research and innovation,” J. Responsible Innov., vol. 9, no. 2, pp. 275–290, May 2022, doi: 10.1080/23299460.2022.2041801. [2] K. Cheong and A. Mitchell, “Kwento: Using a Participatory Approach to Design a Family Storytelling Application for Domestic Helpers,” Lect. Notes Comput. Sci., pp. 493–500, 2015. [3] L. V. Nägele, M. Ryöppy, and D. Wilde, “PDFi: participatory design fiction with vulnerable users,” in Proceedings of the 10th Nordic Conference on Human-Computer Interaction, in NordiCHI ’18. New York, NY, USA: Association for Computing Machinery, Sep. 2018, pp. 819–831. doi: 10.1145/3240167.3240272. [4] H. Ishii, “Bottles: A transparent interface as a tribute to Mark Weiser,” IEICE Trans. Inf. Syst., vol. E87D, pp. 1299–1311, Jun. 2004. [5] B. Ullmer, O. Shaer, A. Mazalek, and C. Hummels, Weaving Fire into Form: Aspirations for Tangible and Embodied Interaction, 1st ed. New York, NY, USA: ACM, 2022. doi: 10.1145/3544564. [6] D. S. Maranan, J. Grant, J. Matthias, M. Phillips, and S. L. Denham, “Haplós: Vibrotactile Somaesthetic Technology for Body Awareness,” in Proceedings of the Fourteenth International Conference on Tangible, Embedded, and Embodied Interaction, in TEI ’20. Sydney NSW, Australia: Association for Computing Machinery, Feb. 2020, pp. 539–543. doi: 10.1145/3374920.3374984. [7] D. Oogjes, W. Odom, and P. Fung, “Designing for an other Home: Expanding and Speculating on Different Forms of Domestic Life,” in Proceedings of the 2018 Designing Interactive Systems Conference, in DIS ’18. New York, NY, USA: Association for Computing Machinery, Jun. 2018, pp. 313–326. doi: 10.1145/3196709.3196810. [8] R. Berland, E. Marques-Sule, J. L. Marín-Mateo, N. Moreno-Segura, A. López-Ridaura, and T. Sentandreu-Mañó, “Effects of the Feldenkrais Method as a Physiotherapy Tool: A Systematic Review and Meta-Analysis of Randomized Controlled Trials,” Int. J. Environ. Res. Public. Health, vol. 19, no. 21, p. 13734, Oct. 2022, doi: 10.3390/ijerph192113734. [9] T. Almeida, R. Comber, and M. Balaam, “HCI and Intimate Care as an Agenda for Change in Women’s Health,” in Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems, San Jose California USA: ACM, May 2016, pp. 2599–2611. doi: 10.1145/2858036.2858187.
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    The Design Of Clinical Trials And Its Associated Support Systems In Interplanetary Missions – A Thought Experiment And Creative Workshop
    (International Astronautical Federation, 2018-10) Nasser, M ; Perez, N ; Knight, J ; Haines, A ; Young, C ; Griffin, J ; Maranan, Diego S. ; Wright, J ; Halkes, M
    On Earth, the best available evidence to inform decisions on the effectiveness of treatments are randomised controlled trials. Depending on relevance of the question, availability of resources and willingness of individuals, these trials range from a few people to thousands. These trials are usually repeated across the world on different populations which provides further information on the generalisability of the effectiveness of interventions. Only a fraction of individuals on Earth participate in clinical trials to provide the evidence basis for the larger population. In aerospace medicine, the number of astronauts is quite limited so doing large clinical trials is difficult: the evidence in aerospace medicine primarily relies on simulated studies on Earth which may be randomised controlled trials or small case series with astronauts in space. The current discussions on long term missions to Mars and other planetary exploration, raise the question of what is the ideal approach for building an infrastructure to conduct clinical trials for long term interplanetary missions. Long term missions require the continuous commitment and motivation of participants in the clinical trial, therefore patient involvement in the research process is more important. This paper uses a combination of a thought experiment with a creative, simulated and interdisciplinary workshop to build a conceptual framework on how clinical trial research infrastructure can be innovated in an inter-planetary mission. Some key aspects of the framework includes: a) Designing and prioritising interventions to manage the problem (democratic versus management approach) b) Overall design of the research project (applicability of prospective meta-analysis, patient preference trials, N-of-1 trials) c) Allocating participants to groups (stratification not only based on characteristics but also by roles and job specification, using Bayesian randomisation to allocate individuals into groups and patient preferred trials) d) Outcome selection and data collection (identifying biomedical, clinical, patient-related, performance-related outcome, data collection over time and monitoring need for adaptation and change) e) Ethics and Partnerships (ethics and consent issues and how they relate to partnerships and relationships). We will suggest using the same methodology to facilitate more in-depth discussions on certain aspects of a clinical trial or managing a diverse range of health problems e.g. contagions.